性聯遺傳型低磷酸鹽症活動
請來參加我們的活動,以了解更多關於性聯遺傳型低磷酸鹽症的相關資料,並與當地的性聯遺傳型低磷酸鹽症社區聯絡。
活動日曆
October 2022
SUN
23 OCT
![](https://www.xlhlink.asia/wp-content/uploads/2020/05/Shine-a-Light-on-XLH-Exhibition.webp)
Join us this October 23rd, 2022, to celebrate the launch of Shine A Light on XLH Virtual Exhibition in conjunction with International XLH Awareness Day (23rd October 2022) as we share with you the experiences and stories of 11 amazing people living with X-Linked Hypophosphatemia (XLH) – a rare lifelong skeletal disease that is caused by a lack of phosphate, affecting about 1 in 20,000 people.1
![](https://www.xlhlink.asia/wp-content/uploads/2020/05/Annette-studio-image.webp)
![](https://www.xlhlink.asia/wp-content/uploads/2020/05/Emily.webp)
![](https://www.xlhlink.asia/wp-content/uploads/2020/05/Shauneen.webp)
References : 1. Beck-Nielsen SS, Mughal Z, Haffner D, et al. FGF23 and its role in X-linked hypophosphatemia-related morbidity. Orphanet J Rare Dis. 2019;14:58.
AP-NP-22-00025 OCT2022
Details
- Date and Time
Sunday 23rd October 2002
- Location
Website
Other
Event Type
International XLH Awareness Day
Event Topic
Conditions
SUN
23 OCT
International XLH Awareness Day – Shine A Light On XLH
References : 1. Beck-Nielsen SS, Mughal Z, Haffner D, et al. FGF23 and its role in X-linked hypophosphatemia-related morbidity. Orphanet J Rare Dis. 2019;14:58.
AP-NP-22-00025 OCT2022
Details
- Date and Time
Sunday 23rd October 2002
- Location
Other
Event Type
International XLH Awareness Day