XLH Event
Come and join us at an event to learn more about XLH and connect with local XLH community.
Event calendar
October 2022
SUN
23 OCT
Join us this October 23rd, 2022, to celebrate the launch of Shine A Light on XLH Virtual Exhibition in conjunction with International XLH Awareness Day (23rd October 2022) as we share with you the experiences and stories of 11 amazing people living with X-Linked Hypophosphatemia (XLH) – a rare lifelong skeletal disease that is caused by a lack of phosphate, affecting about 1 in 20,000 people.1
References : 1. Beck-Nielsen SS, Mughal Z, Haffner D, et al. FGF23 and its role in X-linked hypophosphatemia-related morbidity. Orphanet J Rare Dis. 2019;14:58.
AP-NP-22-00025 OCT2022
Details
- Date and Time
Sunday 23rd October 2002
- Location
Website
Other
Event Type
International XLH Awareness Day
Event Topic
Conditions
SUN
23 OCT
International XLH Awareness Day – Shine A Light On XLH
References : 1. Beck-Nielsen SS, Mughal Z, Haffner D, et al. FGF23 and its role in X-linked hypophosphatemia-related morbidity. Orphanet J Rare Dis. 2019;14:58.
AP-NP-22-00025 OCT2022
Details
- Date and Time
Sunday 23rd October 2002
- Location
Other
Event Type
International XLH Awareness Day
